Intervention Update

I wanted to write a medical update from the other night. I’ve been off Jardiance for 4 days now. I have 150mg of Fluconazole in my system. They gave me a one pill dosage, instead of the 5 day treatment regimen.

I also have a topical creme that I use at night before bed, it’s a little messy, but it is what it is. I’ve cleared up and my skin condition is getting better by the day, back to the normal state of personal care.

It is vitally important for me to stress that certain side effects of some drugs can cause long lasting problems, if not caught right away. At the beginning I did not attribute the problems I was having to my drug regimen, because, as I said then, I’ve not had major issues come up before so I really did not pay attention, until the problems occurring began to really increase.

People on large drug regimens for their various medical issues, should really know what the flip side of good drugs can be. My issues, those dealing with genital issues are of paramount importance, for both Men and Women. One does not want to allow genital issues to become exacerbated and become painful and problematic.

If genital issues re not caught right away, both men and women can have long lasting issues internally and externally, that might not get resolved, hence, immediate attention to situations that have grown out of control.

I don’t usually pay attention to drug commercials on television, because usually, they show a drug then rattle off all the side effects throughout the commercial, and usually I roll my eyes.

When a drug commercial tells us that death is a possibility when you take said drug, I pay attention. You never know how one is going to react to the myriad of drugs on the market.

It was good that I had seen the Jardiance commercial multiple times, because at one point I was listening well to the side effect list.

And that saved my bacon, so to speak.

I think we need to pay attention to drug commercials if we are taking or pondering taking a new drug. That little 30 second commercial might just save your life.

Buyer Beware …

Jardiance – Drug Failure Report

A few months ago, when I started my chastity run, I started having medical issues, that went un-diagnosed until today. I thought, when talking to a couple of “men in the know” who advised that it might just be my problem and to stop. I persisted.

I am on a massive regimen of drugs, both for my HIV and my Diabetes. Both programs must work in concert together. The failure of a drug is not common for me, because I usually tolerate medication without side effects. I really do not focus on the negative, which helps me move forwards every time we begin new medication.

This time, I did not heed the warning that had been in process for almost two months.

Because I do not see my physicians until later this summer, however, I did get medical intervention via phone and fax, and took the two rounds of Fluconazole in late April and early May. The infection was stemmed, but it was not apparent that a particular drug I was taking was failing.

One of the side effects of Jardiance, a Diabetes drug, is genital infections, that, if not addressed quickly, can spin out of control and can cause serious problems, both for MEN and WOMEN.

I’ve been watching the JARDIANCE drug commercial on television here, and they do speak about all the side effects of the drug in the ad.

For some reason, I was paying closer attention to the commercial.

This morning I called the Diabetes clinic and spoke to my nurse assistant who assigns my drugs and has been working with me for many years.

The pain and problems grew over the last 2 weeks, to the point that the pain I was feeling was getting out of hand. We spoke this morning and right away she knew that I had failed the Jardiance. And she said that we would stop the drug immediately. She got me another round of Fluconazole and some creme, that I got at the pharmacy tonight.

It is important to share this information because if you don’t catch a drug failing quickly, that failing drug can cause extensive medical issues for you.

As of tonight, I am off the Jardiance, full stop. I have my Fluconazole that I took earlier and then next time I see my primary care physician at the Diabetes Clinic, we will find a new drug to put in place, because now I am off a drug that not only maintains my A1C and my sugars, and helps my heart health.

I got my new CB-6000 a couple of weeks ago, and I like it much better than the previous chastity incarnation I had, at first chosen. I am unlocked until I finish this drug treatment and my body responds to medical intervention, again.

HIV and Diabetes are critical medical issues, and if you are on certain HIV or Diabetic drugs right now, you need to know that certain side effects can rear their ugly heads and cause you unnecessary medical problems.

So take this as a warning.

Be mindful of whatever is going on IN your body or ON your body. Genital issues, yeast infections can devolve into serious problems that can affect your body, both for MEN and for WOMEN.

BEWARE …

Sunday April 28 Updates

So much has been happening this past week, so much I wanted to say, but felt that if I opened my mouth, it would not be good. I erred on the side of caution.

Last weekend, Easter, did not go as planned.

And I got sick.

Having two medical issues back to back, sometimes makes life a little difficult. We have to be spot on perfect, when it comes to treatment, when one side of the equation goes south, so applied medication does not counter the drugs I am already taking for the other side of the equation.

It is day 28 …

I developed a rather painful infection in the one location that is ripe for infection at any time, that being my “manly bits.” Too much sugar going out of the body, in urination, causes an imbalance of fluids going out. I am on a stable amount of insulin daily, with a booster shot once a week on Sundays.

The booster shot guarantees my body will make insulin on its own, and works twenty four seven. With the added 34 units of insulin I shoot daily from an inject pen.

Let’ just say that by Easter Sunday I had swollen like a stuffed pig, and the pain was immense. I knew I was in trouble. So I obtained the emergency key and unlocked myself. On Monday I phoned my doctor, who was not in, but he reached me part way through the day. I knew what was wrong, and so I also knew the drug I needed right off. A quick call to the pharmacy, and a fax of the request was sent, on Monday night, I had my fix.

If you think socialized medicine is such a bad thing, think again. In any areas, getting treatment is a wait and see prospect. I have two phone numbers I can call, any time, any day, and find my doctor. If it is an emergency, I get pushed to the head of the line in the office. And I get taken right away.

My doctors are brothers. Which makes things a lot easier. Both know the total situation, and I have a team of specialist who will do whatever it is I need at a phone call, and if I need to see them, like I said, I get right in.

After five days of treatment, my body is back in sync.

It was a regular week last week, meeting wise. We had celebrations on Monday night, of serious sober time. Our Matron of the Monday Meeting gave birth to a baby boy on Monday night. We could not be happier for them.

It has been raining too much, and thousands of homes have been flooded because of rising rivers and snow melt from up north. Rivers that flow downhill have overflowed their banks, in Quebec, Ontario, and New Brunswick. Thousands of people have been displaced as of tonight, and the worse, they say will come over the next 48 hours.

Flood rates are higher than they have ever been, and more homes are flooded by multiple FEET not inches. And rivers have yet to crest in many places. Which evacuated people are in the thousands as of tonight.

Homes that were flooded two years ago, are further under water tonight, than they had been back then. The province is talking about shelling out money to move affected residents from the flood plains, but they aren’t offering enough money to make it work. The amount they are offering, $200,000 per house hold, does not hold a stick to multiple hundred thousand dollar homes they are trying to move people from.

It is not a good scene by any stretch.

If you pray … Say a prayer for our people tonight.

I went to The Mission this morning and heard a very bright and intuitive young man speak. He said many good things, I had never heard before and also, his perspective about gratitude for life’s problems. We all have problems, but how many of us find ourselves in the middle of them having either created them, or walked right into them, knowing that was a bad choice to begin with… food for thought.

I went and did some shopping and farted around all afternoon until my evening meeting with my friend. I took a shower and prepped to go out, and today, I locked back up. can’t tell you how good it feels to be back inside.

It frees my mind and my body, because of the word NO.

NO is a Complete Sentence …

I met with my friend today, and we spoke of goals for the future. He has some good ideas. We talked about publishing. Something I have pondered for a long time. I have plenty of material to publish and there are several key demographics I could publish towards as well. So that is tinkering in my brain tonight.

We’ll see where today’s discussion will lead.

I got the third book in Jared Diamond’s Trilogy, beginning with Guns, Germs and Steel, then, Collapse, and now Upheaval. Turning points for Nations in crisis.

Time for bed and a little light reading.

More to come.

Vanity

Do you ever ponder your body ? Do you think about changing something about your looks, often ? Are you obsessed with the way you are ageing?

Since beginning my gym career, I have realized that Gym Mirrors work against you, ALL THE TIME. It does not matter that you wear; tights and loose t-shirts and fitness clothing. Mirrors never lie, and in my humble opinion, the mirrors at my gym tend to accentuate the one part of my body that I am most self conscious about, my tummy.

Twenty five years ago, when I was diagnosed with AIDS, I was much thinner than I am today, MUCH. It did not help that I was terminally ill and slated for death. Many AIDS patients developed what is called “Wasting Syndrome” where your body fat melts and you become skin and bones, which usually led to a very speedy death.

I was on that road for a while. Until my doctor found the miracle drug that would change the game forever. MEGACE, was an oral suspension liquid that was dosed in shot form, once a day. You filled your little shot glass and hoped that it would do the trick.

IT DID.

Hunger is one thing that sick people loose from the get go. Things are really bad, and if you do not eat, or cannot eat, then the slide into death is fast and furious. Even today, we see it in patients who are terminal, and especially in the elderly population. It’s like they know the end is nigh, and hunger leaves them, and people stop eating, or their caloric intake falls exponentially. Hence, death is imminent.

Over a years time, I progressed from 98 pounds to almost 200 hundred pounds. I got so fat, I outgrew all of my clothing. With the weight gain, I gained what is called lypodystrophy. Which is fat gain in certain parts of your body, like your ass, your stomach or your chest.

I also suffer today, from a genetic dystrophy because of my diabetes. And I have a base layer of fat in my stomach, that no amount of exercise or stretching or crunches has ever been able to mediate.

Not long ago, I saw a young guy on Instagram talk about “Cool Sculpting.” This is a cosmetic procedure that freezes fat in the body and the frozen fat, works its way out of the body after each cycle of treatment is completed.

I thought to myself, I’m gonna go check this out and see if I could be a prospective patient. I filled out the questionnaire and had my intake appointment this afternoon. It was all straight forward. They explained that we have two types of fat, One, Fat that is attached to our organs, and Two, fat that is loose in the body, and not connected, that can be suctioned and removed by treatment.

I had both …

I think to myself that I have a few issues that are vanity related that bother me to no end. One, is my teeth situation, which is being worked on at this very moment, so I am spending money hand over fist for oral surgeries, every other week. They begin the rebuild in the coming weeks, so they will begin putting teeth back into my mouth, instead of taking them out.

The other vanity issue is my physical body. And I think, at fifty one years old, is vanity really a problem? My one mantra that I maintain is that:

I will not become Gay, Old and Fat !! Nor Frumpy for that matter.

I am not the run of the mill fifty year old, as compared to the men in this same age bracket, I call my friends. I really don’t want to become any of them either. Each has their own issues, looks and attitudes.

This little exploration of Vanity was vetoed over dinner.

I guess that is that for now.

Maybe if we hit the lottery, we can ponder vanity when it is more cost effective.

Tuesday Thoughts

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I stepped on the scale, a few minutes ago, and it read: 151 lbs. My diabetes doctor had told me that in order to reach optimum numbers of 6’s and 7’s, that I would probably have to up my insulin, one click a day, to reach them. This morning I clicked 25 units.

I have been hitting steady 7’s in the morning, depending on whatever I had eaten inside the 12 hour window from post dinner to morning. I’ve dropped 10 pounds in the last week.

When we began this little “I think I am looking a little sexy” project in February, originally I had lost 10 pounds, down from the 187 back in November. When I realized that I actually lost weight, for the first time in forever, it only jump started my desire to regain sexy. Because I had not felt sexy in as many years.

I had stuck with frumpy acceptance that I would never shed my “pear shape.” I have shed that frumpy “pear shape.”

Since February, I have only worn pants twice. I have one serious wardrobe full of sporty tights and shirts. The other night, Thursday, I was at a meeting, and had I not extended my hand several times, nobody would have noticed me sitting in the room.

At the end of the meeting, one of the old gay buzzards, whom I have known my whole sobriety, got up from his chair to participate in the final prayer, stopped in front of me and gave me one serious look up and down, as he shook his head in dismay, as if to say,
“Why are you dressed that way?”

Need I explain to people who have not been inside the arena with me over the last year?

NO.

People don’t seem to understand that this is my party. And that I don’t accept that the older I get, the frumpier I should look. I’ve been at this physical fitness regimen and Keto diet since February. I’ve lost 36 pounds as of tonight.

That is a small child.

My gay friends are more critical of me than my straight counterparts.

Because I am not one of them, nor do I wish to be.

This holiday season, I am not doing anyone any more favors. I am through being kind to people who don’t reciprocate, and just blindly expect me to give because that is what I have done since I got sober.

If I don’t call my friends and fellows, my phone won’t ring. If I don’t make the out call, nothing gets done, save two sponsees.

They, call me every day.

I go to meetings. I participate. I do service. I give of myself.

People don’t seem to know what reciprocation means and how that works.

Because everyone assumes that
“Oh, Jeremy will do it, so I don’t have to worry about stepping up.”

Not this year …

Thanksgiving is just 19 days away.

Christmas is 97 days away.

Egg Nog is being sold at grocery stores. One of my mentor men’s wife went grocery shopping last week and brought home a jug of Egg Nog, and he tweeted the picture, which ended up with him being interviewed by the CBC in Alberta and made the National News.

I haven’t seen Christmas decorations yet. But that could change at any time.

Fall begins this week. My favorite season of the year.

The turning of the trees, the falling of the leaves, and the very first snowfall are, for me, almost religious observances.

More to come.

Tuesday: Harmonization FAILURE !!!

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I have been riding a wave of feeling good, looking good, and hopeful that my medical condition was about to get much better with labs on the table coming today.

I was terribly Disappointed with my doctor visit today.

  • Yes, I have lost some serious weight
  • Yes, I have been on the Keto Diet since the end of March 2016
  • We added Edurant (HIV) medication (once daily dosing)
  • And upped my Trulicity (dosage weekly)

My HIV numbers are stellar. Cd4’s are above 1000, but:

  • My sugar test stick at the clinic was 20.7
  • My resting fast was 20 on paper
  • And my sugar number was 9.5
  • My Triglycerides were high as well (they have been see sawing for ever)

It was obvious today, that the Harmonization Tests of both types of medication have Failed. Either the drugs are conflicting still, the dosage is wrong, or put bluntly, my doctor could not find an “on paper reason” for my numbers to be so, “out of whack” today.

With serious weight loss, and corrective diet, and reworked medication, a change should have appeared on paper, and didn’t.

My doctors had a phone conference as I sat there, when they decided to test me right then and there to check my sugars, by test strip. Which landed at 20.7.

I test at home and my numbers bounce from 10, up to 20 on any given day. Even if I have a restricted diet, and I am not putting bad food into my system and I am eating a restricted diet, the numbers should be working in my favor, but they are not.

Friends have said that I need to keep my head on and wait to see what the Diabetes clinic says at my emergency appointment on Friday morning, and not jump to any conclusions.

I might need insulin corrective medication added, or just rework my insulin regulation  or they are going to change the mix again.

Some people, I have heard, cannot regulate their sugars successfully and need serious medical intervention. It seems I am at that point myself.

Stay tuned …

Thursday: Dueling Dragons …

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It was a pleasantly BALMY day in Montreal today. This week, we saw temps that are darn right Springy … But we are warned that it won’t last, and that March is going to keep us in the cold for another month.

This week saw all kinds of change.

I live with competing dragons in my system. And either one can be in control, but not both at the same time. And one never knows who is in control until I drop labs. This round, my HIV is in good check but my Diabetes is all out of whack.

On Tuesday I went to clinic one for my lab drop session. Both brothers were in attendance, I got to kill two birds with one stone. The drawback is this, depending on who rules the roost, medication has to be adjusted, and you can’t adjust one side without adjusting the other accordingly.

Doctor Chris, over the years, has managed my medications very well. Because I’ve been testing drugs for him for many, many years. And if they work for me, (in our respective medical circle of drug testers), we are the main line to getting drugs approved in Canada on the whole. So what we do is very important for the community at large.

One by one, over the last five years, my twice a day drugs, have been dropped, opting for once a day dosing medication. But the Once a Day dosing takes time, because the new drugs in the pike were taking longer than usual to get to me, (read Us).

This week, new drugs came online finally. But, if you change one side of the equation, then you have to change the other in conjunction. HIV medications and Diabetes medications, don’t always work together. And I don’t know if one or the other is working well, without trial and error dosing.

If the trend drops either way, the HIV drugs come first.

If I don’t live, no other drug is going to make a difference. So Doctor Chris has to make sure that any new drug he gives me now, needs to plays nice with Diabetes drugs. This round, Diabetes lost.

A new Single dose HIV medication came online … EDURANT

Before I could take this pill, Doctor Chris had to make sure it would work with everything else I was taking already. It didn’t. Which meant my Diabetes drugs had to be tweaked.

Doctor George dropped my Janumet, because Metformin cancels out any good the Edurant will do. Which means I am down one Diabetes drug. And that was the end of that appointment.

Wednesday, I saw Doctor George at his clinic and along with his trial nurse, tried to figure out what they needed to do to make up the difference.

Three months ago, I went on Trulicity injections, once a week at a low dose. Now, it seems, that the low dose was not enough, because I am not managing well at all.

While they conferred together, I stepped on the scale and learned that I dropped ten pounds over the last six months. I knew something was up, when I put on a pair of hubby’s skinny jeans and they fit, WELL.

My Diabetes team upped my Trulicity to double the dose, weekly, along with Invokana, I have a bottle of Glyburide hanging in the wings if need be.

When I got home, I sat down with my nutritional map and planned another tweak to my diet, I am working to eliminate sugar intake at all levels. I put the new plan into action, and I have three months to see how all these changes work together.

If this series works, as it is hoped it will, I will manage both dragons better, and that is the plan. I can produce 1200 t-cells with my eyes closed. That is a given. I am over the ten year mark where my viral load is still undetectable.

Diabetes on the other hand is a capricious lady, who does not play well on the playground.

I have to test every other day to check my trends. I don’t have to prick myself every day any more. The Trulicity is a slow release, weekly dosage. Now that dosage is doubled, along with a moderated dietary plan, it should all work.

Now we dose for this observation period. And I hope to see further weight loss, and better numbers overall.

**** **** ****

Tonight’s take away … I would be ok, if everyone would just leave me alone.

How many of us got to this point before we stepped into the rooms.

Our speaker tonight got sober in December of 1994, the same year I got sober the first time, and I was reminded that had I stayed the first time, I would be 23 years sober now.

But that was not meant to be, and as he said to me, I had a hiccup.