Sunday April 28 Updates

So much has been happening this past week, so much I wanted to say, but felt that if I opened my mouth, it would not be good. I erred on the side of caution.

Last weekend, Easter, did not go as planned.

And I got sick.

Having two medical issues back to back, sometimes makes life a little difficult. We have to be spot on perfect, when it comes to treatment, when one side of the equation goes south, so applied medication does not counter the drugs I am already taking for the other side of the equation.

It is day 28 …

I developed a rather painful infection in the one location that is ripe for infection at any time, that being my “manly bits.” Too much sugar going out of the body, in urination, causes an imbalance of fluids going out. I am on a stable amount of insulin daily, with a booster shot once a week on Sundays.

The booster shot guarantees my body will make insulin on its own, and works twenty four seven. With the added 34 units of insulin I shoot daily from an inject pen.

Let’ just say that by Easter Sunday I had swollen like a stuffed pig, and the pain was immense. I knew I was in trouble. So I obtained the emergency key and unlocked myself. On Monday I phoned my doctor, who was not in, but he reached me part way through the day. I knew what was wrong, and so I also knew the drug I needed right off. A quick call to the pharmacy, and a fax of the request was sent, on Monday night, I had my fix.

If you think socialized medicine is such a bad thing, think again. In any areas, getting treatment is a wait and see prospect. I have two phone numbers I can call, any time, any day, and find my doctor. If it is an emergency, I get pushed to the head of the line in the office. And I get taken right away.

My doctors are brothers. Which makes things a lot easier. Both know the total situation, and I have a team of specialist who will do whatever it is I need at a phone call, and if I need to see them, like I said, I get right in.

After five days of treatment, my body is back in sync.

It was a regular week last week, meeting wise. We had celebrations on Monday night, of serious sober time. Our Matron of the Monday Meeting gave birth to a baby boy on Monday night. We could not be happier for them.

It has been raining too much, and thousands of homes have been flooded because of rising rivers and snow melt from up north. Rivers that flow downhill have overflowed their banks, in Quebec, Ontario, and New Brunswick. Thousands of people have been displaced as of tonight, and the worse, they say will come over the next 48 hours.

Flood rates are higher than they have ever been, and more homes are flooded by multiple FEET not inches. And rivers have yet to crest in many places. Which evacuated people are in the thousands as of tonight.

Homes that were flooded two years ago, are further under water tonight, than they had been back then. The province is talking about shelling out money to move affected residents from the flood plains, but they aren’t offering enough money to make it work. The amount they are offering, $200,000 per house hold, does not hold a stick to multiple hundred thousand dollar homes they are trying to move people from.

It is not a good scene by any stretch.

If you pray … Say a prayer for our people tonight.

I went to The Mission this morning and heard a very bright and intuitive young man speak. He said many good things, I had never heard before and also, his perspective about gratitude for life’s problems. We all have problems, but how many of us find ourselves in the middle of them having either created them, or walked right into them, knowing that was a bad choice to begin with… food for thought.

I went and did some shopping and farted around all afternoon until my evening meeting with my friend. I took a shower and prepped to go out, and today, I locked back up. can’t tell you how good it feels to be back inside.

It frees my mind and my body, because of the word NO.

NO is a Complete Sentence …

I met with my friend today, and we spoke of goals for the future. He has some good ideas. We talked about publishing. Something I have pondered for a long time. I have plenty of material to publish and there are several key demographics I could publish towards as well. So that is tinkering in my brain tonight.

We’ll see where today’s discussion will lead.

I got the third book in Jared Diamond’s Trilogy, beginning with Guns, Germs and Steel, then, Collapse, and now Upheaval. Turning points for Nations in crisis.

Time for bed and a little light reading.

More to come.

Mental Health is Not Just A Hashtag ###

Yesterday was Bell’s Let’s Talk Day, where they donated 5 cents for mass communications on their platform to Mental Health Services.

Mental Health is not just a one day event. You cannot cure Mental Health with a hashtag, nor can you pay it away either. Mental Health is an everyday part of life for many people, including myself and my husband.

Many years ago, when I first met my husband, he was a happy go lucky, smart and funny young man. We had a few months of bliss, before the gauntlet fell down, and our lives were turned upside down.

He was employed at the time but that was to end abruptly. He suffered a major breakdown and ended up falling apart. We got him the help he needed, maybe because we were lucky then, or maybe the right person was in the right place, at the right time.

Hubby was diagnosed as Bi-Polar Two Rapid Cycling. Now we knew what the problem was, we had to then figure out what we were going to do about it. Treatment was in the offing.

What I did not know on the outset of that treatment was this; the man who went in, was not the man who came out the other end.

For ten months, hubby lay comatose on the sofa. I was a full time student in university, I was hitting meetings, doing all the shopping, cooking, laundry, cleaning, bathing, dressing, and feeding my husband.

He could not do anything but lay on the sofa, till the day the doctors found the right pill to give him, to get him to rise from his stupor.

And let me tell you, I screamed from the rooftops that night when he rose from the dead !!!

Mental illness is a daily struggle. And some days are better than others. I’ve learned many things about mental illness, because we live with it. We cannot just turn the tap off when we would like, or have happy days on end. That just does not happen.

Bi-Polar is an illness that takes a second set of eyes. And I believe this with all my heart:

ANYONE SUFFERING FROM ANY MENTAL ILLNESS SHOULD HAVE A SECOND SET OF EYES ON THEM, BECAUSE MANY PEOPLE SUFFER ALONE. DOCTORS GIVE THEM PILLS AND SET THEM ON THEIR WAYS. WITH NARY A WORD AFTERWARDS. SOMEONE NEEDS TO LOOK AFTER THEM.

Thankfully hubby had that second set of eyes on him, and still does to this very day. Observation is the name of the game. Because when things get dicey, you can see it from the outside looking in. And you can tweak medication or get help, if an issue arises that needs to be addressed.

Like I said, above, the man who went into treatment was not the same man who came out the other end. When he finally got up and we assessed what was left, I found that a good portion of who hubby was, was gone. And I asked the doctors where he was, and they told me,

“Well, this is what you get, deal with it.”

I was angry for a long time. Because aspects of our relationship have been missing or gone for many years. The life I had, and thought I wanted, was not the life I ended up with. And sometimes I get really resentful at that, but it is what it is and I had to accept the outcome.

When hubby got sick, I was not going to leave him, nor toss him to the curb. I stayed with him, loved him hard, took care of him and got him the help he needed, so badly.

Yes, he is not the man I met all those years ago, but he has carved his own life out of the wreckage of mental illness that took him apart. He is a two degree university graduate with a Masters Degree in Sociology. He has a career and a life that is beyond measure now.

We built a home, and a life together.

We got married in 2004, basically as a celebration of hubby rising from the dead. He got up in the month of September 2004, and we were married in November of that year, in front of family and friends.

Many people with mental illness suffer alone, many people do not get the advantage of having a second set of eyes on them to make sure they are alright. That is a gift of relationships and friendships that we can be that second set of eyes on our fellow men and women.

I see mental illness every day in our rooms. I attend meetings at the Old Brewery Mission on Sundays, and see countless homeless men and women who suffer alone because they do not have access to the kind of help we, here at home, get.

Mental illness s a scourge on the landscape.

Kids suffer too. In school, in life and with their friends, and also on social media. Bullying is another scourge on our kids. The stigma of mental illness is a problem because if you say something, kids are more likely to begin the cavalcade of stupidity and reckless abuse of their friends, so kids suffer and many of them do not make it and end up killing themselves because of the stress of suffering and the fact that they said something and kids and others turned on them and forced them into a No Win Scenario…

We must stop this kind of social abuse.

We must help our kids.

We must change the way we deal with mental illness.

And we need MORE professionals who can help those in need. We need money to pay for those services, and for the many medications people so badly need and for the most part, cannot afford because drugs are so damned expensive.

And Firstly, getting a simple appointment for mental health screenings are so hard to get. I mean people wait for days, weeks, and months just for an appointment. There aren’t enough mental health professionals out there.

And not every mental health practitioner is the right fit for everyone. Finding the right doctor is like trying to find a needle in a haystack.

We’ve dealt with major pill pushers in our day. For Real !!!

It is far too easy to push pills and abuse a patient. That happened to us and we had to find other means of treatment.

One must be picky about who treats them. Because not all doctors are created equal and not every doctor is an upstanding physician in their chosen field, and that is a FACT.

But, beggars cannot be choosers in this world, I know that. So this is my advice

BUYER BEWARE !!!

Call your friends, call your kids. Ask them if they are ok.

There is NO SHAME in saying that “NO, I AM NOT OKAY!”

That’s the first thing we must teach our kids. It is OK to say, that things are not ok.

I HEARD FROM A SPEAKER ONCE THAT:
THE ONLY THING OUR FEELINGS WANT ARE TO BE FELT.

Too many people suffer in silence because they cannot talk openly or feel safe in saying that, IT IS NOT OKAY!

We must teach our kids that it is ok to talk, AND WE NEED TO SIT DOWN AND FUCKING LISTEN TO THEM.

Put down you god damned phones and take time to check on your kids, and your friends and your family members. We ignore people to our own peril, because if we don’t check up on them and they get worse,

SUICIDE IS A FORGONE OPTION for MANY !!!

Been there, Done that, Got the T-shirt to prove it too.

Mental illness is not just a hashtag.

Pay attention. Listen and help.

We are humans who need to be cared for and loved.

Life is wasted, if we cannot do those things for others, AND for ourselves.

If you suffer and you need to talk

I AM HERE, I WILL LISTEN. I CAN TRY TO HELP.

Because I am Responsible.

A Story:

An elderly man walked into an emergency room, needing stitches removed from his hand. He was jittery and fumbling with his watch. A nurse was watching him fidget, and after a while, spoke to him and asked him what he needed. And the old man told him he needed stitches out.

They set down for the job. The old man was still fidgety, like he needed to be somewhere else at that very moment. The nurse picked up on that and asked him if he needed to be somewhere and the elderly man replied, Yes, I do.

The conversation continued, and the elderly man said that he needed to go have breakfast with his wife. That he had breakfast with his wife every day.

The nurse was surprised. And the man went on…

You see, my wife has Alzheimers and she does not know who I am.

The nurse was perplexed. And asked why, if his wife did not know who the man was, why was he still having breakfast with her every day?

The old man replied… SHE MIGHT NOT KNOW WHO I AM TODAY, BUT I REMEMBER WHO SHE IS.

That story changed my life, which was why I stayed with my husband, because he might not be the man I got in the end, but I remember who he was and I know who he is today …


Finding may help doctors target dormant HIV

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This is big and important news. If this works, it will change the ball game in our favor. Dormant HIV has been a long and unsolved mystery. Now, the mystery begins to unravel.
CTVNews.ca Staff
Published Monday, March 20, 2017 10:13AM EDT

European researchers say they have identified a key protein that can help them identify immune cells that are harbouring dormant HIV, opening up a new way to target these cells and pave the way for a cure.

Although HIV medications can greatly reduce levels of the virus in patients, there is still no cure. The drugs can’t kill all the retrovirus because HIV has a way of infecting immune cells called T-cells and then going dormant. The virus can remain inside the cell for years or decades, hidden from the drugs designed to kill it.

But if an HIV patient stops taking her antiretroviral drugs, the dormant retrovirus will “awaken” and rapidly begin reproducing.

AIDS researchers have long sought a way to find these T-cells infected with dormant HIV so that they can target them with therapies. But it’s remained a mystery how to identify them.

Now virologists at the University of Montpellier in France think they may have found a way to recognize these “sleeper cells.” They have identified a protein called CD32a that sits on the surface of HIV-infected T-cells.

Their experiments showed that healthy T-cells do not express the protein, and neither do cells carrying active HIV. Only T-cells hiding dormant HIV make the protein.

The team made their finding after placing T-cells in lab dishes and then exposing them to fluorescently tagged HIV. They watched cells become infected and searched for differences in the gene expressions between the infected and non-infected cells. That’s when they noticed the CD32a protein marker.

The researchers then tested their theory by taking blood samples from 12 HIV-infected people who were on antiretrovirus medication. Using an antibody that sticks to CD32a, the researchers were able to extract all the cells expressing the protein. As expected, all the cells were T-cells harbouring dormant HIV.

The research team says their finding paves the way to a better understanding of viral reservoirs. It’s also possible that CD32a could one day become a reliable marker of cells that are infected with dormant HIV, which could help in the creation of drugs to target these latent cells.

The findings are published in the journal Nature. France’s CNRS (National Center for Scientific Research) has now filed for a patent for the diagnostic and therapeutic use of the biomarker.

Anthony Fauci, director of the U.S. National Insitute of Allergies and Infectious Disease in Bethesda, Maryland, told Nature that the next step will be to replicate the findings by screening blood from patients of different ethnicities, ages and stages of the disease.

Fauci said he is excited about the potential of CD23a but remains cautious about the finding given the decades of research that have gone into HIV without the discovery of a cure.